The Abigail Wexner Research Institute at Nationwide Children, Dublin , United States

Lindsay Alfano is an associate professor in The Abigail Wexner Research Institute at Nationwide Children’s Hospital. She is a physical therapist specializing in outcome measure administration, selection, and development for patients with neuromuscular diseases.

Center for Research in Myology, Paris , France

Valérie Allamand holds a PhD in human genetics and has been working on muscular dystrophies for almost 3 decades. She co-supervises a team with Gisèle Bonne. Her research focuses on several forms of neuromuscular disorders, including COL6- and LAMA2-RD.

The University of Hong Kong, Hong Kong SAR , China

https://www.worldmusclesociety.org/news/view/meet-the-members-dr-sophelia-chan

Catholic University of Sacred Heart - Fondazione Policlinico Universitario Agostino Gemelli IRCCS, Rome , Italy

University of Liege, Belgium, Liege , Belgium

I have a PhD in Public Health and I'm a post-doctoral researcher at the University of Liège. I have been working for 15 years with sick children, first as a nurse specialised in children and then as head nurse in paediatrics. I was a project manager for newborn screening for spinal muscular atrophy and I did my PhD on its medico-economic analysis. I'm now project manager for Baby Detect project (Genomic newborn screening) and in post-doctoral position to continue medico-economic analysis of spinal muscular atrophy in Europe.

Newgiza University School of Medicine, Cairo , Egypt

I'm interested in studying patterns of LGMD patients in the region. I work in Egypt and Iraq to help provide the best MD patient care and diagnosis. I received my training & my Doctorate degree thesis on the genetics of Neuromuscular disorders in the National Institute of Neuroscience NCNP, Japan, under the mentorship of Prof. Ikuya Nonaka and Prof Ichizo Nishino. Currently, I’m the chair & Founder of Myocare National Foundation, an NGO working with LGMD patients. I’m also the Head of the Neurology Module and an assistant professor of neuromuscular disorders at New Giza University's School of Medicine. I've been the chair of the WMS committee “Myology across the world” since 2020 and the Africa-ME WMS chapter lead. I worked as a fellow researcher in NCNP in Tokyo, and completed my Doctorate degree thesis on the genetics of muscular dystrophy. Currently, I’m the Chair Rare Disorders Committee and a scientific committee member on the “Egyptian National Genome” project. I'm currently the Project manager of the Iraqi National Registry.

Sorbonne Université, GHU Pitié-Salpêtrière Hospital, Paris , France

Dr Teresinha Evangelista is a Board-certified neurologist and neuropathologist with long standing clinical and research expertise in neuromuscular disorders. Dr Teresinha Evangelista was the president of the Portuguese Society for the Study of Neuromuscular Diseases from 2009 to 2013. In 2018, she became the coordinator of the European Reference Network for rare neuromuscular diseases EURO-NMD. In 2018, she joined the « Unité de Morphologie Neuromusculaire; Institut de Myologie - Sorbonne Université, GHU Pitié-Salpêtrière ».

University of Texas Health San Antonio, San Antonio , United States

0

BG Universitätsklinikum Bergmannsheil, Bochum , Germany

Felix is a neurologist based in Berlin, Germany, with a focus on hereditary and acquired myopathies. As a member of the LGBTQIA+ community, Felix is dedicated to fostering inclusivity and amplifying the visibility of diverse voices within the World Muscle Society and the broader field of neuromuscular medicine.

Stichting SpierKracht\LGMD CAB, Bilthoven , Netherlands

2006 As mom of two kids with LGMD we founded Stichting SpierKracht. In 10 years we are now serving families worldwide and provide them with all information they need (diagnose, living, education, trials, access). In 2019 we started the LGMD CAB in 2022 I became member of the taskforce DITA

Mayo Clinic, Rochester , United States

Dr. Liewluck is a Professor of Neurology at the Mayo Clinic College of Medicine in Rochester, Minnesota, USA. He obtained his medical degree from the Faculty of Medicine, Siriraj Hospital, Mahidol University in Thailand, and pursued a neuromuscular research fellowship at the National Center of Neurology and Psychiatry of Japan under the directorship of Professor Ichizo Nishino. He furthered his expertise with a neurology residency at the University of Miami Miller School of Medicine, followed by dual fellowships in Clinical Neurophysiology (EMG) and Muscle Diseases at the Mayo Clinic in Rochester under the directorship of the late Professor Andrew G. Engel. Dr. Liewluck holds board certifications in Neurology, Neuromuscular Medicine, and Clinical Neuromuscular Pathology. His clinical practice and research focus on a comprehensive understanding of muscle diseases, particularly acquired myopathies. He has authored over 130 peer-reviewed articles and nine book chapters and co-edited one book. Dr. Liewluck is actively involved in professional organizations such as the WMS, AAN, ANA, AANEM, IMACS, and IMyoS. He served as chair of the ANA Neuromuscular Disease Special Interest Group in 2023, vice chair of the AAN Neuromuscular Section from 2023 to 2025, and vice chair of the IMACS Scientific Committee from 2023 to 2025. Dr. Liewluck currently chairs the Abstract Review Committee of the AANEM and is an associate board member of IMyoS.

Nationwide Children's Hospital, Columbus , United States

Bangalore Baptist Hospital, Bangalore , India

Clinical paediatrics

UCL GOS Institute of Child Health, London , United Kingdom

Cincinnati Children's Hospital, Cincinnati , United States

I am a board-certified pediatric neurologist specialized in neuromuscular disease. I am currently Associate Professor and Attending physician at Cincinnati Children's Hospital Medical Center. I am leading the multidisciplinary comprehensive neuromuscular care program as co-director and neurology lead of the program, also as clinical director of certified Duchenne Muscular Dystrophy care clinic and clinical director of Muscular Dystrophy Association clinic. I am a clinical researcher participating in clinical trials and studies in pediatric neuromuscular diseases.