The WMS has been providing advice for people with neuromuscular disorders, and their healthcare providers since the start of the COVID-19 pandemic. Two documents were created to help patients, carers, and medical providers. One is about COVID-19 and neuromuscular disorders, and the other is about the vaccines. The WMS will keep updating the advice as things change. The documents have been translated into many languages by WMS members from around the world which demonstrates the true value of sharing this information as well as the international reach the neuromuscular community has.
The World Health Organisation asked the WMS to help spread information about COVID-19 and other important communications to national neuromuscular organisations. The WMS has made a network for these organisations and wants to make a list of all the organisations involved. If your organisation wants to be listed, you can fill out a form. If you're not a WMS member, you need to make a free account first. This Directory is for information purposes only, the WMS doesn't take responsibility for the content of other organisations' websites.
If you have any queries, please contact us.
ASGCT is the primary professional membership organization for gene and cell therapy. The mission of ASGCT is to advance knowledge, awareness, and education leading to the discovery and clinical app...
United States
The AOMC was established: to promote, establish, undertake, carry out, develop, maintain, operate, run, manage train, help or administer social welfare, provide advancement of care and educat...
India
A network of pathologists, geneticists, allied health professionals, researchers and patient advocates from around Australia and New Zealand working to more effectively diagnose, research, treat an...
Australia
The object of the Society is to act as a multidisciplinary professional body of experts to promote the clinical practice, education and advancement of knowledge about muscle disease, myasthenia gra...
United Kingdom
CMT-NET is an interdisciplinary German network with the intention of bringing together experts from different areas of research to collaborate on the molecular pathogenesis, epidemiology, diagnosis...
Germany
DMD Aileleri Derneği (can be translated in English as DMD Families Association) is a young and rapidly growing association which was established in Turkey in June 2019 by the families that fight to...
Turkey
EAMDA is a nonprofit umbrella organization that connects together neuromuscular disorders associations across the European Union. EAMDA supports NMD associations and their activities around Europe ...
Slovenia
EURO-NMD is a European Reference Network for the thematic grouping of rare neuromuscular diseases (NMDs). NMDs collectively affect an estimated 500,000 EU citizens and result in significant costs...
France
The European Academy of Neurology (EAN) is a non-profit, independent organisation representing more than 45,000 members, as well as 47 European national neurological societies. As a medical society...
Austria
ENMC background The European Neuromuscular Centre (ENMC) was founded in 1992 by a group of European patient associations that dedicated itself to bring leading researchers and clinicians from all ...
Netherlands
The EPNS is an international and independent non-profit making Society for physicians, health professionals, scientists, and students with research and/or clinical interest in Paediatric Neurology....
France
The French Health Care Network for rare neuromuscular diseases aims to coordinate, facilitate and promote professional interactions between the various players in neuromuscular diseases.
France
Myositis, also termed idioathic inflammatory myopathies, is a group of different diseases affecting skeletal muscle and potentially other internal organs through autoimmune inflammatory processes. ...
Germany
MD-NET (Muscular Dystrophy Network) is a Germany-wide consortium funded by the BMBF to improve medical care for people with neuromuscular diseases (funding code 01GM0887). From 2003 up to and incl...
Germany
The Moroccan Society of Neurophysiology (SMNPH), a non-profit association established under the Dahir of November 15, 1958, and amended by the Dahir law of April 10, 1973, stands as a dynamic and a...
Morocco
Myo-Care National Foundation is an Egyptian non-profit NGO dedicated to optimizing medical care, research, and access to therapy for muscular dystrophy patients in the region. Myo-Care was founded ...
Egypt
The Peripheral Nerve Society is an international non-profit organization of scientists, physicians, and other healthcare providers working together to investigate and treat diseases of the peripher...
United States
The French Society of Myology (SFM) was founded in 2002. Its aim is to promote myology in all its aspects (research, academia, university, public), to give it a national visibility, to disseminate ...
France
SOLANE se ha impuesto como misión promover el conocimiento, el avance, la difusión y la investigación en el campo de las enfermedades neuromusculares (ENM) en toda Améri...
Argentina
The purpose of the Foundation is to promote scientific research in the field of neuromuscular diseases in Switzerland. This is done primarily by an annual call for research grants for Swiss residen...
Switzerland
TREAT-NMD is a network for the neuromuscular field that provides an infrastructure to ensure that the most promising new therapies reach patients as quickly as possible. Since its launch in January...
United Kingdom
Our association exists because we, as affected people, know exactly what it means to live with a rare disease from the group of the centronuclear myopathies (CNM). That is why we offer people w...
Germany
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