World Duchenne Organization and Duchenne Data Foundation are thrilled to announce that applications for the highly anticipated Duchenne Patient Academy 2023 are now open. This immersive in-person training event for Duchenne and Becker patient advocates will be held from November 30 to December 2, 2023. After three successful years of virtual Academies, this marks the return to an in-person format in Athens, Greece.
The Duchenne Patient Academy is a unique opportunity for motivated patient advocates to receive intensive training on key aspects and skills needed to make a meaningful impact in the field. Advocates with an interest in advancing research, advocating for access, and improving standards of care for Duchenne and Becker patients are encouraged to apply.
Accepted applicants will receive full coverage of food and accommodation expenses for the duration of the training, as well as reimbursement of travel expenses. Selected participants can expect a reply by the beginning of November.
Apply for Duchenne Patient Academy 2023
The application submission deadline is October 30
Agenda Duchenne Patient Academy 2023
At the Duchenne Patient Academy 2023, participants will gain insights and knowledge on a wide range of crucial topics. They will dive into Duchenne research and statistical applications, receive clinical trial updates, and explore care & inclusion programs. The program will also cover aspects like access & reimbursement, clinical trial readiness, and the implementation of care guidelines. Furthermore, attendees will gain insights into the intricacies of global advocacy and engage in a variety of interactive workshops, fostering skills in collaboration, negotiation, and community-building.
Topics
Elizabeth Vroom, Chair of the World Duchenne Organization, emphasized the significance of this event, stating, "For a global advocacy strategy, it is key to come together and understand patient advocacy that can be applied in national context as well as the global picture. The Duchenne Patient Academy provides an invaluable platform for patient advocates to collaborate and advance our shared mission."
To apply for the Duchenne Patient Academy 2023, interested individuals must submit an application accompanied by a signed letter of recommendation from their respective patient organization. Don't miss this unique opportunity to learn, network, and contribute to the advancement of Duchenne and Becker patient advocacy.
For more information and to submit your application, please visit the Duchenne Patient Academy website
For questions about the training program or applications, please contact:
Suzie-Ann Bakker
DPA Program Manager
suzieann@duchennedatafoundation.org
Duchenne Patient Academy is an initiative of the World Duchenne Organization and receives support by the Duchenne Data Foundation. Upon the launch of the first edition in 2018, Duchenne Patient Academy has trained over 500 patient advocates from 55 countries. Over the course of multiple days, patient representatives receive training and education on how to successfully advocate for people living with dystrophinopathies.
Published on 1 October 2023.
