WMS Community Directory

The WMS has been providing advice for people with neuromuscular disorders, and their healthcare providers since the start of the COVID-19 pandemic. We produced a document outlining recommendations for Covid-19 and people with neuromuscular disorders which has been prepared primarily for patients, carers, general neurologists and non-specialist medical providers. It is intended to inform neuromuscular specialists particularly regarding frequently asked questions and basic service requirements. We have also produced a document aiming to answer questions regarding the newly developed vaccines against Coronavirus SARS-CoV2, asked by people with neuromuscular disorders. This is a rapidly developing field, and the WMS will of course keep this advice in regular review. We have been delighted that WMS members from around the globe have now translated the documents into so many languages which demonstrates the true value of sharing this information as well as the international reach the neuromuscular community has.

The WMS have been approached by the World Health Organisation (WHO) to coordinate the dissemination of information on guidance on clinical management of COVID-19 to the national organisations in the neuromuscular community and other important communication. We have therefore established this community network because we would like to create a central list of all the national societies and networks who would like to be involved.

If you believe your organisation should be listed here, please complete this short registration form. If you are not already a WMS member, you will be prompted to setup a free online WMS Account before you can fill in the form. If you have any queries, please contact Clare Beach office@worldmusclesociety.org.

Association Shifa des Maladies NeuroMusculaires

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British Myology Society

The object of the Society is to act as a multidisciplinary professional body of experts to promote the clinical practice, education and advancement...

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DMD Aileleri Derneği

DMD Aileleri Derneği (can be translated in English as DMD Families Association) is a young and rapidly growing association which was established in...

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EAMDA (European Alliance of Neuromuscular Disorders Associations)

EAMDA is a nonprofit umbrella organization that connects together neuromuscular disorders associations across the European Union. EAMDA supports NM...

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EURO-NMD is a European Reference Network for the thematic grouping of rare neuromuscular diseases (NMDs). NMDs collectively affect an estimated 5...

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European Neuromuscular Centre (ENMC)

ENMC background The European Neuromuscular Centre (ENMC) was founded in 1992 by a group of European patient associations that dedicated itself to ...

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Myo-Care National Foundation

Myo-Care National Foundation is an Egyptian non-profit NGO dedicated to optimizing medical care, research, and access to therapy for muscular dystr...

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Solane Ac

SOLANE se ha impuesto como misión promover el conocimiento, el avance, la difusión y la investigación en el campo de las enfer...

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Swiss Foundation for Research on Muscle Diseases

The purpose of the Foundation is to promote scientific research in the field of neuromuscular diseases in Switzerland. This is done primarily by an...

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TREAT-NMD is a network for the neuromuscular field that provides an infrastructure to ensure that the most promising new therapies reach patients a...

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University of Messina

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ZNM - Zusammen Stark! e. V.

Our association exists because we, as affected people, know exactly what it means to live with a rare disease from the group of the centronuclear m...

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