Duchenne UK was founded by two mothers whose sons were diagnosed with Duchenne muscular dystrophy in 2011. Thanks to the army of healthcare professionals, scientists, drug developers and families who have joined us in our fight to end Duchenne, we have achieved so much more than we could ever have imagined 12 years ago. We have one clear aim: to end Duchenne. As the leading Duchenne muscular dystrophy charity in the UK, we connect the best researchers with industry, the NHS, and families. We know what patients need because we are patients ourselves – living this disease on the front line. We take an innovative approach to funding: we not only accelerate research and bring treatments to patients, but work to change the landscape of drug development. This collaborative approach means that we are able to bring treatments to patients as quickly and effectively as possible. At the heart of everything we do are our boys and men, and rare girls, living with DMD.
