Patient Advocacy Group Directory

Looking beyond the scientific and educational needs of healthcare professionals, WMS aims to play an important role with regards to strengthening patient advocacy. This is accomplished by taking a variety of proactive steps to work together with patient advocate groups.

We extend a warm invitation to neuromuscular patient advocacy groups from around the world to collaborate with the World Muscle Society (WMS) in a collective effort to strengthen our community. At WMS, we are committed to building a robust network that fosters collaboration, information sharing, and support among organisations dedicated to neuromuscular health.

To achieve this goal, we are in the process of compiling a comprehensive directory of Patient Advocacy Groups. If you wish to be included in our directory, kindly fill out a form. If you are not already a WMS member, we encourage you to create a free account.

Please note that this directory is intended solely for informational purposes, and the WMS does not assume responsibility for the content of other organisations' websites. Together, we can create a powerful platform for advocacy and support within the neuromuscular community.

If you have any queries, please contact us.

Duchenne UK

Duchenne UK was founded by two mothers whose sons were diagnosed with Duchenne muscular dystrophy in 2011. Thanks to the army of healthcare professionals, scientists, drug developers and families w...

United Kingdom

Muscular Dystrophy UK

We’re the leading charity for over 110,000 people in the UK living with one of over 60 muscle wasting and weakening conditions. We share expert advice and support to people living with muscle wasti...

United Kingdom

Myotubular Trust

Myotubular Trust was set up in 2006 to become a respected funder of world-class peer reviewed medical research, in order to contribute to finding a treatment for myotubular and centronuclear myopat...

United Kingdom

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