Team Titin, Inc.

Titin Virtual Case Conference & Science Update - a growing group of titin experts meet virtually twice a year, the goals of these biannual conferences are to:

• assist clinical teams by presenting cases to help more families find answers
• review resolutions of past cases to illuminate the diagnostic process and protocols
• share new research tools and methods
• foster international goodwill and collaboration on titin-related clinical and research issues

The virtual Titin Case Conference and Science Update will be on the first Wednesday of May and November at 8 AM ET. Please email [email protected] to confirm meeting dates in case of any changes.

If you have a complex case with TTN variants (solved or unsolved) and are interested in presenting to the group, please reach out to Sarah Foye [email protected]. Please reach out with any questions. Sarah Foye, Team Titin Marco Savarese, PhD, Group Leader Myofin, Folkhälsan Research Center & University of Helsinki, Finland Bjarne Udd, MD, PhD, Folkhälsan Research Center & University of Helsinki, Finland and Tampere Neuromuscular Center.