Myotubular Trust - 2022 call for projects (open to international applications)

Myotubular Trust are delighted to announce their 2022 call for grants, a joint grant call with Muscular Dystrophy UK.

The Myotubular Trust (Registered Charity No: 1137177) was set up in 2006 to raise money for research to find a cure or treatment for any form of centronuclear and myotubular myopathy (congenital X-linked recessive; congenital autosomal recessive; autosomal dominant), focusing on research that would not generally be funded by public or industrial funding sources.

In particular, in 2022 they would like to encourage research into the involvement of liver abnormalities in myotubular myopathy.

They are interested in project grant applications (of 2-3 years’ duration) that could address some, or all, of the following: 

• The generation of a greater understanding of the natural history of liver abnormalities in the condition 

• Increased insight into the mechanism of action in the liver and bile transport functions in myotubular myopathy 

• The interplay between myotubularin deficiency, treatment and liver dysfunction 

• The discovery of quantifiable biomarkers that can be predictive or diagnostic of liver involvement, and measured over time for progression / response to intervention

For all proposals, they expect applicants to address how the outcomes of their research will increase the chances of clinical trials moving through to successful outcomes. 

They are interested in the application of novel approaches and technologies to research into myotubular and centronuclear myopathy. Therefore, they encourage collaboration between different medical disciplines and / or different research institutions. They are willing to support research in the UK and internationally if applicants can sign up to their Terms and Conditions. They are also willing to consider applications which involve joint funding of new projects with other organisations.  

The Trust may be willing to fund the continuation of a research project (but not to fund an existing project that is already fully funded by another body). Please use the project grant form to apply for such a continuation. If in doubt, please clarify details of any other co-funders and contact Myotubular Trust before applying.  

The deadline for submission applications is 17:00 GMT on Friday 27th January 2023. Applications will not be accepted after the deadline, but can be submitted at any time prior.

The Myotubular Trust Scientific Advisory Board (SAB), is chaired by Professor Francesco Muntoni of The Institute of Child Health, University College London. The SAB makes recommendations to the Myotubular Trust Trustees on which projects to fund based on scientific merit and peer review.

Further information  

Further guidance and an application form can be found on the website -  If you wish to learn more about the Myotubular Trust, please see their website or email


17 November 2022 - 17 January 2023

Published on 17 November 2022.

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