Duchenne Data Foundation partners with World Duchenne Organization to enhance patient advocacy and education and help drive the international advocacy agenda for people living with dystrophinopathies.
Are you a Duchenne and/or Becker MD patient advocate with a strong interest in the unique challenges of patient advocacy? If so, please join us December 1 – 3 at Duchenne Patient Academy and receive training and updates to set a solid basis for current and future global advocacy.
As the dystrophinopathy field seeks to empower patient representatives to advocate for better lives for people affected by Duchenne and Becker muscular dystrophy, collaborating to educate the global community is essential. To help support this goal, we are excited to announce that applications for the 2022 edition of Duchenne Patient Academy are now open.
Title: Duchenne Patient Academy 2022
Date: December 1 – 3, 2022
Time: 15:00 – 19:00 Central European Time
Once again, Duchenne Data Foundation and World Duchenne Organization are partnering to enhance and expand knowledge about patient advocacy, and the skills that are needed to overcome challenges. Duchenne Patient Academy prepares to welcome 150 highly motivated patient representatives.
The virtual training will take place December 1-3, 2022 from 15:00 to 19:00 Central European Time. You can apply by completing the form below. Proficient knowledge of the English language is required to follow and participate in Duchenne Patient Academy.
Applications will be open until November 10, 12:00 Central European Time.
This year’s theme is Changing Perspectives. The program is designed to balance the latest information with sharing of experience on topics that are of interest to the community. Expert presentations are followed by an interactive panel discussion, setting the strategic path for the future. The 2022 DPA curriculum consists of the following topics: Research & Innovation, Advocacy & Networking, and Care & Allied Therapies.
The program contains live interactive sessions with experts in their respective fields. Participants will learn how to make strategic decisions to scale up their organization, be updated on clinical research and developments, and implement learnings from the advocacy community to enhance the lives of people with dystrophinopathy in their country.
There will be a poster session where selected posters will be presented. We encourage patient representatives, patient organizations, academics, and healthcare professionals to submit a poster abstract. Poster submission is not limited to participants.
We are looking forward to a fruitful Duchenne Patient Academy 2022, delivering high-quality and relevant skills training to Duchenne and Becker MD patient advocates.
About Duchenne Patient Academy
Duchenne Patient Academy (DPA) is a collaboration between the Duchenne Data Foundation and World Duchenne Organization. DPA aims to inspire and equip patient advocates to become change makers and build a better future for people living with dystrophinopathies. Since its launch in 2017, DPA has trained 500+ DMD and BMD patient representatives from over 50 countries. The Academy connects leading experts in their fields in an intensive training and capacity building program. The aim is to contribute a unified and strong voice to coordinate the global advocacy strategy of the community.
Published on 14 October 2022.