We’re excited to announce the 2026 FSHD Society Connect Conference:
June 27–28, 2026 at the Hyatt Regency O’Hare, Chicago
The Connect Conference is the largest global gathering of individuals and families living with FSHD, alongside leading researchers, clinicians, and advocates.
Whether you’re newly diagnosed or have been living with FSHD for years, this is your opportunity to gain knowledge, share experiences, and feel the strength of our community.
More details to come—stay tuned!
Published on 28 July 2025.
