The 2025 Scientific and Family Conference (SciFam) will take place on 1st-5th August in Philadelphia USA, bringing together more than 400 stakeholders from around the world in congenital muscular dystrophy, nemaline myopathy and titinopathy.
This event includes a two-day family conference and a 1.5 day scientific symposium. The family conference offers the opportunity for the patient community to learn about the latest medical guidance and research, and for researchers and clinicians to connect with affected individuals and their families, to not only answer their questions, but to help inform their work. For families attending SciFam the first time, most have never been in the presence of another affected individual traveling a similar journey or living with the same diagnosis. The connections made among those in the patient community at SciFam are life-long and life changing.
The scientific symposium features presentations and discussion for researchers and clinicians working in CMD, NM and/or Titin. While spotlighting our organisation's latest funded research, this meeting will also include panel discussions around overlapping efforts toward identifying treatments across the subtypes. Attending this portion of the conference will allow those working in the field to connect with their colleagues, share insights, and identify potential collaboration opportunities.
In addition to these two primary gatherings, we will also host a series of smaller meetings for clinicians to make progress on a project launched in 2024: CMD Subtype-Specific Care Guidelines (Collagen 6, LAMA2, LMNA, SELENON, and the Dystroglycanopathies).
Please see our organisers' websites for further details: Cure CMD, A Foundation Building Strength, Team Titin
Published on 3 June 2025.
